Malaria Data Access Committee launched
TDR has convened an independent Data Access Committee to support the WorldWide Antimalarial Resistance Network (WWARN) data contributors in making decisions on access to malaria datasets.
WWARN is updating the technical, governance and ethical framework of its data-sharing platform to help researchers meet the demands of funders and journals by promoting different options in how they make their data accessible. These new options will continue to protect the rights and privacy of the people and communities from which the data originate, and recognise the investment of the researchers who conducted the studies and collected the data.
To accomplish this transition, TDR has convened an independent Data Access Committee to review applications for access to data held within the WWARN repository. Data contributors will soon be able to decide if they want to delegate decisions about data access to the committee.
Members of the committee include:
- Piero Olliaro, TDR, the Special Programme for Research and Training in Tropical Diseases, Switzerland (non-voting Chair)
- Mahamadou Thera, University of Bamako, Mali
- Jantina de Vries, University of Cape Town, South Africa
- Martin Meremikwu, University of Calabar, Nigeria
- Lyda Osorio, Universidad del Valle, Colombia
- Neena Valecha, National Institute of Malaria Research, India
- Huynh Hong Quang, Institute of Malariology Parasitology and Entomology, Vietnam.
The committee members were nominated by the malaria research community and selected to ensure representation from malaria endemic regions, a range of expertise, gender balance, and a range of institutions.
The committee will make decisions about data access only on datasets where data contributors have delegated decision-making power to the Data Access Committee.
The committee is now developing terms of operation and decision making. When complete, these will be shared with the malaria community and data contributors will be invited to decide if they would like to delegate decisions to the committee.
For more information about the committee or the updates to the data access process, visit the Accessing Data webpage.
For further questions, email malariaDAC@iddo.org