Useful online resources on ELSI of human genomics
Bioethics
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Bioethics Today
Bioethics Today is a new web based resource on the ethical, medical, legal, social science and lay perspectives on biomedical research and biotechnology related to animals, humans and agriculture. It is developed by the Universities of Sheffield, Lancaster and Oxford, funded by The Wellcome Trust. -
International Bioethics Exchange Project (USA)
The International Bioethics Exchange Project (IBEP), a new program of the Institute's Library and Information Services area, promotes research and education in bioethics in the developing world. Through IBEP, multiple volumes of the Bibliography of Bioethics, an annual compilation of citations and abstracts to English-language literature, are donated to libraries abroad in order to encourage the development of bioethics reference resources in those countries. -
Science and Development Network (UK)
The Science and Development Network (SciDev.Net) aims to enhance the provision of reliable and authoritative information on science- and technology-related issues that impact on the economic and social development of developing countries. Their goal is to ensure that both individuals and organisations in the developing world are better placed to make informed decisions on these issues. This site includes information on medical ethics, intellectual property as well GM foods and related areas. -
The American Journal Of Bioethics (USA)
The American Journal of Bioethics provides a rapid, peer-reviewed collection of scholarship about emerging issues in bioethics. AJOB is an authoritative forum for the discussion of new developments in the whole range of questions in bioethics, including both perennial and emergent controversies in cell and molecular genetics, reproductive technology, end of life care, human research, distribution of resources, transplantation, diversity, and health services research. -
The Hastings Centre - Genetics and biotechnology
Fast-moving advances in molecular biology offer tremendous potential for improving human lives, but they also pose difficult questions about human identity, social relations, use of resources, and our relations to the natural world. What values should genetic medicine and biotechnology serve? When is regulation appropriate, and what form should it take? -
The Ethics of Gene Patenting: Centre for Bioethics University of Pennsylvania
Center faculty have been studying and writing about the effects of gene patenting for many years. Drs. Jon Merz and Mildred Cho of Stanford, working with Dr. Debra Leonard of Penn and others, have developed a body of empirical work looking primarily at the effects of patents claiming genetic diagnostic tests on the practice of medicine. A large interview-based case study examining the effects on clinical medicine and research of patented genes has been done. A number of smaller studies have also been performed, including work examining licensing practices, and several studies that are currently in preparation looking more in depth at patenting, licensing, and interferences in biotechnology.